Today is a day of I
wants. I want the doctor to come see
me. I want to go home. I want to be able
to breathe easy again. I want to laugh without
getting winded. I want more reasons to
laugh. I want there to be a cure for CF.
I want the fight to be over. I want to
want these things and not feel selfish or self pitied. I want to want these things and for it to be
okay to stomp my foot and cross my arms to make it happen but, most days I don’t
get what I want.
The truth is I am just tired
of being weak. I am tired of trying to
be strong, trying to hold back the tears, the doubts, and the questions. I don’t want to question it any longer. I don’t want to wonder why I have to do this
anymore. Is being in the hospital almost
every month somehow good enough? Is that
life good enough? Is that battle worth
continuing to fight? Am I ever going to
get to rest? For just a few months get to forget how ruthless this disease
is?
Several weeks ago my
devotional spoke about weakness, about how weakness stirs up God’s
compassion. We don’t always get to
understand why He makes the choices He does, but we do get to rest in the
understanding that God knows exactly how we feel and exactly what we are facing
and in some instances He may be the only one who does.
“Do not compare yourself with
others, who seem to skip along their life-path with ease. Their journeys have
been different from yours, and I have gifted them with abundant energy. I have gifted you with fragility, providing opportunities
for your spirit to blossom in My Presence.” –Sarah Young
I have been challenged to see
my fragility as a gift, this harsh reality as a gift, this struggle as a
gift. Over the past few weeks I have
been trying to figure out just what that looks like. Being in the hospital has made it that much
more of a reality. So here is my
confession, I am not strong, I will never be athletic, I can’t hold a steady
job, I feel like I have no opportunity to be there for anyone else because
everyone is trying to be here for me, but I am not gift less. Sometimes my situation sounds hopeless or my
life compared to the cost would be considered worthless to others, but I am
gifted! I am weak! My body fails me every day, but guess
what? My God doesn’t. I have Cystic Fibrosis, I have diabetes, I
have liver disease, and the doctors think they hold my fate in their hands, but
they don’t. My God does. I have survived Cystic Fibrosis thus far; I
was the recipient of a liver transplant the doctors thought I wouldn’t
get. I lived through cancer; I have
lived through my entire blood being replaced.
I have lived through infections that kill most people. I have lived through enough to know that my
life means something. And that something is enough, it is enough to fight for,
enough to make this all worth it. When
God steps in to save your life, you don’t get to question if your life is worth
it. His saving grace makes it worth
it. That is proof that this is all going
to be worth it.
I saw this quote today “Is
what you are living for worth Christ dying for?” I thought about it for a while and I realized
sometimes you don’t get to know the specifics of what you are living for. For me it is all about living in
general. All I know is that God has
asked me to fight for my life. So I am fighting for my life and trusting that
there is something big enough in this world to be worth all of the pain, all of
the heartache, all of the confusion, all of the fighting, there has to be
something that is making this all worth it.
There has to be because why else would God ask me to live this life? Cystic
Fibrosis isn’t the only disease out there that makes us question who God choses
as His soldiers for those battles.
We fight to live despite the
odds because the truth is the odds are just a number. We fight because we are human and we want to
live. We fight despite everything
because we all want to believe, to hope that there is something greater than us
who is fighting for us too, someone out there who can create a miracle and give
us a second chance, even though we don’t deserve it. That person is God and
trust me, He knows you, He knows what battles you are facing, and He isn’t
about to go anywhere.
Kari, you're amazing, and you inspire me. I'll be praying for you! Great post.
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